描述
开 本: 32开纸 张: 胶版纸包 装: 平装是否套装: 否国际标准书号ISBN: 9781400052011
Katherine was a beautiful, perfect baby for the first year of
her life. Then, without warning, she changed forever. She started
crossing her eyes. She cried at night for hours at a time and could
not be soothed. She stopped saying words, stopped crawling, and
began what would become a lifelong habit of wringing her hands.
Hospital visits and consultations with doctors offered no answers
to the mystery. Soon Katherine slipped away to a place her mother
and father could never reach.
In Keeping Katherine, Susan Zimmermann tells the story of her
life with her daughter Katherine, who has Rett syndrome, a
devastating neurological disorder. Writing with honesty and candor,
Zimmermann chronicles her personal journey to accept the changed
dynamic of her family; the strain of caring for a special needs
child and the pressure it placed on her marriage, career, and
relationship with her parents; the dilemma of whether Kat would be
better cared for in a group home; and most important, the altered
reality of her daughter’s future. A story of personal
transformation that reminds us that it isn’t what happens to us
that shapes our humanity, but how we react, Keeping Katherine shows
the unconditional love that exists in families and the gifts the
profoundly disabled can offer to those who try to understand
them.
“Susan Zimmermann’s deeply moving book will touch all people,
not only parents. Her courage, her joy, and her hope reach through
her tragedy and offer us all a way of life that is creative, no
matter what the circumstances.” —Madeleine L’Engle, Newbery
Award–winning author
“Susan Zimmermann portrays, with honesty, passion, and wisdom, a
chapter of her life that is both deeply terrifying and wholly
inspiring. It is a story of loss and gain, pain and joy, and—above
all—profound truth. It is a story with the power to change your
life.” —T. A. Barron, author of Heartlight, The Ancient One, and
The Lost Years of Merlin series
“Susan’s story—and Kat’s—is a profound gift. Susan reminds us
that it isn’t what happens to us that determines our life, but how
we respond to it.” —Marilyn Van Derbur, author of Miss America By
Day
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